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Health & FitnessDoctor denies giving cerebral palsy Scot poor care before death because he was disabled

13:40  17 september  2019
13:40  17 september  2019 Source:   msn.com

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Cerebral palsy Doctor denies giving cerebral palsy Scot poor care before death because he was disabled Sunday Mail Young Scot winner Adam Bojelian died in March 2015 from multiple organ failure as a result of bacterial infection.

When a child is born with cerebral palsy , the exact causes are not always known. Ultimately, the cause is abnormal development in the brain, which This is a common cause of cerebral palsy , but not all neonatal strokes will result in this condition. Other possible complications include learning, language

A doctor who treated an award-winning Scots teenager with cerebral palsy before his death has denied a claim the youngster received a poor standard of care because he was disabled.

, who had quadriplegic cerebral palsy, died in March 2015 from multiple organ failure as a result of bacterial infection, an inquest heard.

The 15-year-old from Edinburgh scooped the Sunday Mail Young Scot Arts award in 2012 . He was one of Scotland’s most promising poets and won several other awards, including a Brit Writers’ Award.

Unable to walk or talk, he painstakingly composed poems letter by letter using his eyes by blinking, which won him a host of fans, including Hollywood star .

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Cerebral palsy and other disabilities make people more vulnerable to all types of abuse from Anyone who cares for and loves a child with cerebral palsy should be aware of the possibility of Children with disabilities are four times more likely than non- disabled children to be victims of any

Cerebral palsy , a group of neurological disorders characterized by paralysis resulting from abnormal development of or damage to the brain either before birth or Ataxic cerebral palsy is a rare form of the condition that is characterized by poor coordination, muscle weakness, an unsteady gait, and

His mother, Zoe Bojelian, told the inquest she felt the hospital in Leeds where he died had a culture of excluding parents and that staff felt it was not worth putting in the resources because her son was disabled. She also noted that they did not have a care plan for Adam similar to the one he had when he was treated in Edinburgh.

Dr Philip Chetcuti, who was a paediatric consultant at Leeds Teaching Hospitals NHS Trust, said the claims were untrue.

He told the inquest at Wakefield Coroner's Court: "A large part of our workload in paediatrics is looking after children with severe disabilities.

"We give everything to look after them and others, and to help them. That's just not the case (that he was given a poor standard of care)."

Dr Chetcuti told the inquest Adam had lung disease, was vulnerable to infection and frequently had to take strong antibiotics.

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Learn how to care for a child with cerebral palsy . A person with cerebral palsy has a range of chronic movement and posture disorders as the direct result of brain damage within the areas that control movement.

Cerebral palsy is a neurological condition caused by brain damage. The damage to the brain that a child suffers during or soon after birth affects muscle tone and movement, which affects mobility over all. It is an extensive type of assessment that helps doctors determine how a patient walks and why.

He said: "We started to see a spiral of decline that we couldn't do anything about.

"He was on a really, really strong, powerful regime of triple antibiotics."

"Antibiotics have side-effects, it's a situation that was becoming more and more difficult because we weren't winning, we didn't know how to win.

"I didn't know how to make Adam better. I didn't know anybody who knew how to make Adam better. I wish I had."

Doctor denies giving cerebral palsy Scot poor care before death because he was disabled © Sunday Mail Adam Bojelian (front row, far left) at the Sunday Mail Young Scot awards in 2012

The inquest heard the hospital did not have a care plan for Adam during his time under Dr Chetcuti's care, despite his parents giving him a document from his previous hospital in Edinburgh.

The doctor said: "In retrospect, this document would have been useful.

"It's putting down what we know but it's doing it in a logical way with a plan. I think that would have been of some benefit."

The inquest also heard a communication plan was drawn up in 2013, the year Adam arrived in Leeds, based on his ability to communicate through blinking.

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He has Global development delay. He was born by c-section 2 weeks early classed as 'Failure to thrive. Thanks so much for replying to me Cerebral palsy is a lack of oxygen of the brain when they are born. She was my first child so when I went to the hospital to give birth my labor was almost 15 hours.

Cerebral palsy (CP) is a group of disorders that affect a person’s ability to move and maintain balance and posture. A person with severe CP might need to use special equipment to be able to walk, or might not be able to walk at all and might need lifelong care .

Dr Chetcuti said Adam could communicate but anything more complex than "yes" or "no" had to be interpreted by his parents.

He said: "I talked a lot to Adam, as I would to every severely disabled child.

"There were times when he was alert and bright and he would appear he was very aware of me and he would respond by blinking.

"I wouldn't know how to interpret that. His parents would interpret that on his behalf."

The inquest heard Mrs Bojelian believes sepsis should have been included as a cause of death on her son's post-mortem examination report and he should have been treated in a paediatric intensive care unit, rather than on a ward.

Dr Chetcuti said he did not accept a report that claimed Adam was not safe on the ward.

A diary entry written by Mrs Bojelian at the time and read to the inquest on Monday described how she and her husband were "exhausted" by being left alone to care for Adam in hospital, despite him having funding for one-to-one care.

The inquest continues.

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