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UK NewsTwo-year-old with severe epilepsy ‘unable to obtain medical cannabis in UK’

07:15  06 december  2018
07:15  06 december  2018 Source:   msn.com

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In the context of an ever-louder international debate on whether patients with severe forms of epilepsy should be allowed to use medical cannabis to manage their condition, the Food and Drug Administration have just officially approved one such drug.

The first NHS prescription for medical marijuana has been given to an 11- year - old boy with severe epilepsy . Billy Caldwell began taking cannabis oil for The mouth spray, called Sativex, contains two chemical extracts taken from the cannabis plant. It was licenced for use in the UK in 2010, but is not

Two-year-old with severe epilepsy ‘unable to obtain medical cannabis in UK’ © (Family handout/PA) Robin Emerson with his two-year old daughter Jorja Emerson

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A two-year-old girl who was prescribed medical cannabis cannot yet receive treatment as no UK pharmacy holds a licence to sell it, according to her father.

Jorja Emerson, who suffers from severe epilepsy, is believed to be the first child in the UK to be prescribed the drug.

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Updated: 4th December 2018, 9:30 pm. A TWO - year - old girl with severe epilepsy is believed to Although there are other children who are currently receiving medical cannabis treatment in the UK The decision to reschedule cannabis products followed several high-profile cases, including those of

An 11- year - old boy with severe epilepsy has become the poster child for a “miraculous” medical marijuana Billy Caldwell began taking cannabis oil for his seizures after seeing a childhood epilepsy expert Billy suffers from status epilepsy , a severe form which means he is unable to come out of

However, after her family fought for weeks to secure the landmark prescription from a private hospital in London on Monday, they have now been told they face a further delay in obtaining treatment.

Video: Father Of First Child To Be Prescribed Medicinal Cannabis Reveals £3k Cost (LBC)

Robin Emerson, Jorja’s 33-year-old entrepreneur father, said: “We are letting bureaucracy get in the way of saving children’s lives.

“Jorja is entitled to her medication and it’s legal. There should be no issue.”

She urgently needs the treatment, he added, and currently has a chest infection which is “setting off her seizures”.

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Woman is first UK patient to get cannabis prescription A 32-year-old woman is believed to be the first person prescribed cannabis in the UK after it was made legal for medicinal use last month. Carly Barton, from Brighton, who suffers constant pain from fibromyalgia following a stroke in her 20s, was given a prescription by a private doctor who specialises in pain management. The NHS is not funding the treatment, so she is having to pay £2,500 for three months' treatment herself. She hopes that if she can show it is helping her chronic pain, it could "open the floodgates" for the government to decide to pay for the treatment for herself and others.

This article is over 1 year old . A new drug derived from cannabis has been shown to reduce the convulsive seizures experienced by children with a severe form of epilepsy by nearly a half – and in a small number, stop them altogether. Epilepsy patients turning to medicinal cannabis , survey shows.

The parents of a two - year - old girl with severe epilepsy are sending a plea to Home Secretary Sajid Javid to Alfie Dingley, a six year old boy with severe epilepsy , and his mother Hannah Deacon who said It is already legal there for medical reasons. Austria decriminalised the use of cannabis in

He added: “Anything could happen.”

A Government spokesman pointed out that medical cannabis “can be imported using appropriately licensed pharmaceutical wholesalers”.

However, Robin said this process could take “weeks or months”.

Two-year-old with severe epilepsy ‘unable to obtain medical cannabis in UK’ © Provided by The Press Association Two-year old Jorja Emerson who is believed to be the first child to be prescribed medical cannabis since the drug was rescheduled in November (Family hanout/PA)

Responding to Jorja’s case, Sir Mike Penning MP, who co-chairs the All-Party Parliamentary Group on Prescribed Use of Medical Cannabis, said: “Parents like Robin already have more than a head full, coping with the stresses and strains of caring for very sick children.

“The last thing they need is a long and tortuous process to actually get the medicine that’s been prescribed.

“This assault course of bureaucracy needs sorting out once and for all.

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The UK home secretary has just launched a review into medicinal uses of cannabis following public pressure from the families of two sick children: 12- year - old Billy Caldwell and The cannabis is moved to a secret location in the UK where CBD is extracted and purified, and made into a medicine .

UK denies a 6- year - old cannabis oil to prevent his seizures. The family has moved to the Netherlands to become medical marijuana refugees. The government of the United Kingdom is denying a six- year - old with a rare form of epilepsy a license to treat his condition with cannabis oil, which

Two-year-old with severe epilepsy ‘unable to obtain medical cannabis in UK’ © Provided by The Press Association Robin Emerson with his daughter Jorja (Family handout/PA)

“But in the meantime, if this prescription isn’t sorted soon I’m minded to ask a small cross party group of MPs led by myself and my co-chair Tonia Antoniazzi to go and get it from Canada and give it to Robin for Jorja.”

Robin said that for Jorja, the treatment is “the difference between her living and dying”.

Jorja, who is from Dundonald in County Down, Northern Ireland, suffers up to 30 seizures each day.

Robin said he will not leave London until he has obtained the drug.

The Government spokesman added: “There are already a range of products that can be supplied and we are working closely with a range of other manufacturers to ensure a wider range is available for specialists to prescribe for their patients.”

There are a small number of patients already receiving the treatment following lawful importation, he added, and no Home Office import licences have been refused from appropriately licensed pharmaceutical wholesalers in relation to medical cannabis.

He would not comment on the individual case.

Health Minister Simon Harris says he'd like to see Irish farmers growing cannabis.
Minister Harris revealed he hopes to pass legislation clearing the drug for medicinal use in 2019 . And he told Ear to the Ground that he would like to see a homegrown crop of medical marijuana in the future. RTE’s flagship farming series examined how the crop could be grown in Ireland if it is given the green light by the government. Minister Harris said: “This is not about the recreational use and people smoking joints.

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