Ireland: 'I was too afraid to let myself love him in case he died' – mum shares story of son’s journey with kidney surgery - PressFrom - United Kingdom
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Ireland'I was too afraid to let myself love him in case he died' – mum shares story of son’s journey with kidney surgery

16:15  15 march  2019
16:15  15 march  2019 Source:   independent.ie

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We asked our readers to share their stories of grief. Here, 6 people explain what it’ s like to lose a parent My mum went to pieces and I was just old enough to be aware that she was in a mess. He died half way through my GCSEs, so it affected my relationships, mental health and just the normal

I Too Had a Love Story is an English autobiographical novel written by Ravinder Singh. This was the debut novel of the author and was first published in 2008 by Srishti Publishers, in 2012 it was republished by Penguin India.

'I was too afraid to let myself love him in case he died' – mum shares story of son’s journey with kidney surgery Jessica Bergin from Ballyboughal in Dublin has praised the staff at Crumlin hospital for saving her son Roman's life, and has called for more public investment into paediatric research

A mother has paid tribute to nurses and doctors who "adored and cared" for her little boy when he was born a life-threatening kidney condition.

Jessica Bergin from Ballyboughal, Dublin said that she was "too afraid" to love her little boy Roman in case he died. But staff at Crumlin Hospital battled to save his life

Jessica said that everything was running smoothly with her first pregnancy until she had her 20 week scan.

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Featured Shared Story . Dear Rona, I feel and share your pain and sadness, as my dad passed too from kidney disease. He was in the hospital for a while, but the thing was I go to school in Ohio. Since he died , let ' s just say my relations with his side of the family has been seriously messed up.

“That my mum died too young to see me turn from an ungrateful, truculent teenager into a person and father I hope she’d be proud of”. Might even get that tattooed on to their arms. Career-choice regrets made me realise a pattern was developing … regret seems most often to be about fear.

'I was too afraid to let myself love him in case he died' – mum shares story of son’s journey with kidney surgery Little Roman is two-years-old now

“I found out that the baby’s bladder wasn’t emptying properly and as a result fluid was traveling back into his kidneys and damaging them," she said.

"His kidneys were monitored throughout the whole pregnancy and I knew that when he was born he was going to be brought to Crumlin Hospital.”

Jessica explained that when Roman was born his kidneys were in bad shape. She was prepared for the worst and knew he would be in danger once he was born.

'I was too afraid to let myself love him in case he died' – mum shares story of son’s journey with kidney surgery Jessica Bergin from Ballyboughal in Dublin has praised the staff at Crumlin hospital for saving her son Roman's life, and has called for more public investment into paediatric research

She admitted that she was "too afraid to let myself love him in case he died".

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That too is a form of worship. Her hips grind. Pestle and water, cinnamon and gloves. Mother dearest let me inherit the Earth. Teach me how to make him beg. Let me make up for the years he He bathes me until I forget their names and faces. I ask him to look me in the eye when I come home.

Featured Shared Story . That' s a sad story . I 'm deeply sorry for your loss, and I can imagine what you felt at My mum had gone out to do some shopping and I was upstairs in my room doing uni work. I did CPR, but unfortunately it was too late. He died very suddenly, even the post mortem couldn't

“Things looked more stable than originally thought when he was born but I was constantly afraid," she said.

"The nurses and doctors in Crumlin Hospital were amazing. They adored and cared for him from the second he arrived through their doors.

"They didn’t just look after him, they took care of me too in ways that I will forever be grateful to them for.

"When Roman was about a week old a nurse came to see me at around midnight and she asked me why I wouldn’t hold him as often as I could and for the first time since finding out about his problems, I admitted that I was too afraid to let myself love him in case he died.

'I was too afraid to let myself love him in case he died' – mum shares story of son’s journey with kidney surgery Roman's life was saved by staff at Crumlin Children's Hospital

"I was terrified to get attached."

"She spent the next hour explaining every part of Romans condition, the present and long term implications, then she finished by telling me that he was not going to die," she added.

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He became afraid to bring the subject up. I was absolutely scrupulous about contraception, of course, and I never even had a scare. I also got my GP to refer me for hypnotherapy. I had five sessions and the hypnotist helped me to put myself into a trance where I couldn't feel pain.

For starter’ s he is into EVERYTHING! He loves to make[…] Jameson’ s blood test came back today and confirmed that it is in fact Pfeiffer syndrome that he has. This blog was created for our son Jameson. He was born with syndromic craniosynostosis.

"Those words were the biggest relief any mother can hear! From that moment on things could only look brighter."

Jessica said that the family are lucky that Roman only had one kidney infection in the last year and that his hospital stays have been very limited considering his condition.

"Looking at him you wouldn’t think there was anything wrong with him. He had surgery to create a stoma on his bladder which takes the pressure off his kidneys and bladder, giving them a chance to heal," she said.

"He had a scan recently and we know his kidneys are growing, which is a great sign.

"Originally we believed the best case scenario was 30pc kidney capacity for life and a kidney transplant down the line but a consultation at six months showed that he has already reached 60pc kidney function.

"Roman is the strongest, cheekiest, happiest little boy in the whole world regardless of his condition. I want him to have the same opportunities as every other kid his age.

"He’s two now and he is the best thing that has ever happened to me and so, so many other people.”

Jessica has called for more public investment into paediatric research. CMRF Crumlin supported Jessica and her son Roman during their stay at Crumlin hospital. CMRF Crumlin raises vital funds for Crumlin hospital and the National Children’s Research Centre (NCRC).

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I loved him , I just didn’t understand why his actions towards me were sometimes unthinkably cruel and selfish Not that he brought the best out in me either. Around him , I was needy and insecure, calling and Charlie Sheen tells Lindsay Lohan to 'stay the course' as she continues her sobriety journey ' I

I loved him , I understood him , and I supported him so how could he want space from me ? That feeling made me do some interesting things to try to win him back. The thing is that people are so afraid of looking needy, scared of getting hurt, that we do anything and everything to protect ourselves.

“Research into children’s health is so important. Children should never be born sick but unfortunately they are. Research means that hopefully one day this will not be the case. It’s so important for our children so they can live and grow without worry or illness," she said.

To donate to CMRF, go to https://cmrf.org/donate

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