Health & Fit: Oregon girl, 4, provides life-saving bone marrow for infant brother with 'Bubble Boy' disease - PressFrom - US
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Health & FitOregon girl, 4, provides life-saving bone marrow for infant brother with 'Bubble Boy' disease

17:15  18 september  2019
17:15  18 september  2019 Source:   foxnews.com

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A 4 -year-old girl in Oregon already filled the role of hero for her infant brother after she provided lifesaving bone marrow for him earlier this week. Khloe was found to be a donor match for her 7-week-old brother Colton, who was diagnosed with severe combined immunodeficiency (SCID) when

A 4 -year-old Oregon girl is being hailed a hero after donating bone marrow to save her baby brother , who was born with the deadly “ bubble boy disease She began the Facebook update simply with “My sweet girl .” VIDEO: Four Brothers with Same Fatal Bone Marrow Disease Fight for Their Lives

A 4-year-old girl in Oregon already filled the role of hero for her infant brother after she provided lifesaving bone marrow for him earlier this week. In an emotional update posted on Monday, Kayla Land said that her daughter Khloe and infant son Colton are doing “great.”

Oregon girl, 4, provides life-saving bone marrow for infant brother with 'Bubble Boy' disease© GoFundMe

Khloe was found to be a donor match for her 7-week-old brother Colton, who was diagnosed with severe combined immunodeficiency (SCID) when he was about a week old. The disorder is also referred to as “bubble boy” disease. Infants with SCID appear healthy at birth but are highly susceptible to severe infections, as the disorder is caused by mutations in different genes involved in the development and function of immune cells.

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A 4 -year-old girl is scheduled to donate bone marrow Monday to her younger brother , Colton, who was The likelihood of a sibling being a perfect match for a bone marrow donation is only about 25 The condition is known more broadly as “the bubble boy disease ” because people who have it often

Khloe Land, of Coos Bay, Oregon , has been nicknamed "the superhero" by her family -- and for good reason. The 4 -year-old is scheduled to donate bone marrow today to her younger brother , Colton, who was born without an immune system. Khloe's bone marrow was a "perfect match".

Symptoms occur in infancy and can include serious or life-threatening infections, particularly viral infections, according to the National Institute of Allergy and Infectious Disease. Standard treatment involves stem cell transplantation, with the ideal donor being a sibling who is a close tissue match.

The transplants are considered life-saving, but often only partially restore immunity, according to NIAID.

Both Khloe and Colton’s other big sister, Krissy, were tested as potential donors.

Oregon girl, 4, provides life-saving bone marrow for infant brother with 'Bubble Boy' disease© Land Family

“My husband and I were hoping it was our older daughter because she understood and she wanted to be the one to help her little brother,” Kayla Land told Good Morning America. “When we found it was Khloe, she was really excited at first and then fear kicked in within about 30 seconds she broke down and told us how scared she was.”

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A 4 -year-old Pennsylvania boy saved his two infant twin brothers by donating bone marrow after they were diagnosed with a rare disease .

The boys ' oldest brother , 9-year-old Dominick, also had CGD as an infant , but he received an umbilical cord transplant from an anonymous donor Michael went in for his procedure first, and then went to watch his bone marrow be transplanted into his brothers . “He could have said ‘No Mommy

In Monday’s Facebook post, Kayla Land said it took some convincing to calm Khloe down as they began pre-op procedures at OHSU Doernbecher Children’s Hospital in Portland.

“After Daniel and I both begged and pleaded and bribed with everything we could think of, I finally just felt very desperate because I had one child that was sitting here scared to death and another that needed this more than anything,” Kayla Land said. “So I just had to tell her your brother is not going to survive if you don’t do this I have to have you do this Khloe. We finally got there – it took some time.”

Land said after surgery the doctor said they were able to get enough marrow from Khloe for two additional transplants, which they will freeze in case Colton needs more in the future. She said in a month he will be evaluated to see how many of his cells are Khloe’s.

Oregon girl, 4, provides life-saving bone marrow for infant brother with 'Bubble Boy' disease© Land Family

His doctor told Good Morning America that Colton was "incredibly lucky" to have a sibling donor.

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On Tuesday, Land shared photos of her husband Daniel and their daughters with Colton, as well as a visit to the “Make A Wish Tree,” where the girls had written messages for their brother’s health.

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4-Year-Old Donates Bone Marrow to Save Baby Brother with 'Bubble Boy Disease'.
“He’s incredibly lucky to have had a matched sibling,” a doctor says.

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